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“Unless someone sees and hears you, how do you know you exist?” Meanings of confidential conversations – a hermeneutic study of the experiences of patients with palliative care needs
Mid Sweden University, Faculty of Human Sciences, Department of Health Sciences (HOV).
Mid Sweden University, Faculty of Human Sciences, Department of Health Sciences (HOV).
Mid Sweden University, Faculty of Human Sciences, Department of Health Sciences (HOV).ORCID iD: 0000-0003-3075-0833
Mid Sweden University, Faculty of Human Sciences, Department of Health Sciences (HOV).ORCID iD: 0000-0001-9623-5813
2024 (English)In: BMC Nursing, E-ISSN 1472-6955, Vol. 23, no 1, article id 336Article in journal (Refereed) Published
Abstract [en]

Background: Patients with palliative care needs live with the reality of limited time due to illness or age, eliciting emotional and existential responses. A failure to address their existential needs can lead to significant suffering. A person-centred approach is paramount to effectively address these needs, emphasising holistic care and effective communication. Although existing communication models focus on predefined frameworks, a need exists to explore more spontaneous and confidential conversations between patients and nurses. Confidential conversations have the potential to build therapeutic relationships and provide vital emotional support, highlighting the need for further research and integration into palliative care practice. This study aims to more deeply understand the meaning of confidential conversations for patients with palliative care needs. Methods: In-depth interviews were conducted with 10 patients in the context of specialised palliative care. A hermeneutic analysis was used to gain a deeper understanding of the meanings of the conversations. Results: The patients had varying experiences and wishes concerning confidential conversations. They strived for self-determination in finding confidants, seeking trust and comfort in their interactions with nurses. Trust was crucial for creating a safe space where patients could express themselves authentically. In shared belonging, confidential conversations with a nurse provided validation and relief from life’s challenges. Experiences of feeling unheard or rejected by a nurse could intensify loneliness, prompting individuals to withdraw and remain silent. Regardless of the motives behind their choices, it was crucial that patients felt respect and validation in their decisions. Their autonomy could thus be recognised, and they felt empowered to make decisions based on their unique preferences. Conclusions: Patients value trust and understanding, particularly in confidential conversations with nurses, which offer solace, validation and empowerment. However, indifference can increase patients’ suffering, fostering self-doubt and reluctance to engage further. To address this, health care can prioritise empathic communication skills, offer ongoing support to nurses, and promote continuity in care through investment in training and resources. Additionally, adopting a person-centred approach in confidential conversations is crucial, considering patients’ varying preferences. 

Place, publisher, year, edition, pages
Springer Nature , 2024. Vol. 23, no 1, article id 336
Keywords [en]
Communication, Confidential conversations, Home care, Hospice, Nursing, Palliative care, Qualitative research
National Category
Nursing
Identifiers
URN: urn:nbn:se:miun:diva-51390DOI: 10.1186/s12912-024-01988-9ISI: 001227011800001Scopus ID: 2-s2.0-85193567401OAI: oai:DiVA.org:miun-51390DiVA, id: diva2:1861470
Available from: 2024-05-28 Created: 2024-05-28 Last updated: 2025-09-25

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Stenman, ToveRönngren, YlvaNäppä, UllaMelin-Johansson, Christina

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CiteExportLink to record
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