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  • 1. Lawoko, S
    et al.
    Soares, Joaquim JF
    Unit of Mental Health, Samhällsmedicin, Stockholm, Sweden..
    Social support among parents of children with congenital heart disease, parents of children with other diseases and parents of healthy children2003In: Scandinavian Journal of Occupational Therapy, ISSN 1103-8128, E-ISSN 1651-2014, Vol. 10, no 4, p. 177-187Article in journal (Refereed)
  • 2. McMillen, A. M.
    et al.
    Söderberg, Siv
    Disabled person's experience of dependence on assistive devices2002In: Scandinavian Journal of Occupational Therapy, ISSN 1103-8128, E-ISSN 1651-2014, Vol. 9, no 4, p. 176-183Article in journal (Refereed)
    Abstract [en]

    The aim of this study was to elucidate disabled persons' experience of dependence on assistive devices. Fifteen persons were interviewed with a narrative approach. A qualitative thematic content analysis was used to analyse the interview text. The analysis resulted in four themes with nine sub-themes. The study shows that the participants' experience of being dependent on assistive devices included possibilities such as gaining a better quality of life and being able to live a normal life. The dependence also led to obstacles like a fear of injuring oneself when utilizing assistive devices, difficulties in accepting them and worry about future needs for devices. The participants experienced a changed reception from other people and problems imposed by society or the community. They felt that they were treated in a different way and were in the way. A lack of access to public places and a feeling of helplessness when faced with the power of the authorities were other experiences of the participants. The relationship between the approach that people take to their illness and the acceptance of using assistive technology needs further study. Further research concerning the way in which people handle their dependence on assistive devices needs to be conducted.

  • 3. Soares, Joaquim
    et al.
    Grossi, G
    Stockholm University.
    A randomized, controlled comparison of educational and behavioural interventions for women with fibromyalgia2002In: Scandinavian Journal of Occupational Therapy, ISSN 1103-8128, E-ISSN 1651-2014, Vol. 9, no 1, p. 35-45Article in journal (Refereed)
    Abstract [en]

    We evaluated the effects of educational (EI) and behavioural interventions (BI) across a 10-week treatment period and at 6-month follow-up on various variables (e.g. coping with pain) for female patients with fibromyalgia (FM). The effects of EI and BI vs. the waiting-list control (WLC) group were also analysed. The EI did not lead to any significant changes. The BI led to benefits on the patients' use of pain coping strategies, functional disability, perceptions of pain and quality of sleep. With the exception of quality of sleep, these effects disappeared at follow-up. The WLC deteriorated in some of the Coping Strategies Questionnaire (CSQ) and the McGill Pain Questionnaire (MPQ) subscales. The BI did somewhat better than the EI, in particular, but only the improvement in sleep-quality remained over time. We concluded that improvements were few after treatment and all, but one, disappeared at follow-up. Essentially, there were no differences between the three conditions in terms of effectiveness. More research is needed to clarify further the value of behaviourally oriented interventions for FM patients, particularly their value over time.

  • 4.
    Soares, Joaquim
    et al.
    Karolinska institutet.
    Grossi, G
    Stockholm University.
    Psychosocial factors, pain parameters, mental health and coping among Turkish and Swedish patients with musculoskeletal pain1999In: Scandinavian Journal of Occupational Therapy, ISSN 1103-8128, E-ISSN 1651-2014, Vol. 6, no 4, p. 174-183-Article in journal (Refereed)
    Abstract [en]

    The objective of the study was to examine differences between 65 Turkish and 446 Swedish patients with musculoskeletal pain in terms of several sociodemographic, pain-related and psychosocial parameters (e.g. burnout, job strain). The design was cross-sectional. Data were collected by means of questionnaires in conjunction with the patients' visits to general practitioners or physiotherapists. Turkish patients, in comparison to Swedish patients, were more often widows or widowers, blue-collar workers and had lower educational levels. They were more often unemployed and more troubled by their financial and living situation, supported themselves more often via benefits, and had had longer sick-leave periods. Further, Turks rated their pain as being of longer duration and more intense, constant and complex. They were more often consumers of analgesics and sedatives, experienced treatments as less effective, and felt more disabled. Finally, Turks perceived higher demands and less control in their work environments, exhibited greater emotional distress and burnout, had lower self-esteem, and poorer ability to cope with pain. It was concluded that compared to Swedish patients, Turkish patients were exposed to a greater variety of psychosocial stressors, were more negatively affected by their pain conditions, had poorer mental health and less ability to cope with pain. These findings suggest that multidisciplinary team interventions are required in order to target multiple problematic areas of these patients' life situations.

  • 5.
    Soares, Joaquim
    et al.
    Karolinska Institutet, Department of Public Health Sciences Division of Social Medicine Centre for the Development of Health Services.
    Grossi, G
    Stockholm University.
    The relationship between levels of self-esteem, clinical variables, anxiety/depression and coping among patients with Musculoskeletal Pain2000In: Scandinavian Journal of Occupational Therapy, ISSN 1103-8128, E-ISSN 1651-2014, Vol. 7, no 2, p. 87-95Article in journal (Refereed)
    Abstract [en]

    The aim of this investigation was to examine the associations between self-esteem (SE), anxiety/depression (i.e. GHQ), pain variables (e.g. complexity), perceived disability, and coping styles, in 651 patients (mean age 45 years, 72% females) seeking care from general practitioners or physiotherapists for musculoskeletal pain. The study design was cross-sectional and data were collected by means of questionnaires during 15 consecutive days. Hierarchical regression analyses showed that SE was lower among female patients, independently of possible confounders. Furthermore, SE was negatively associated with anxiety/depression, and positively associated with pain intensity and active coping. The relationship between SE and pain intensity seems to be influenced by levels of emotional distress. It was concluded that SE is related to female gender, anxiety/depression, pain intensity and active coping style in patients with musculoskeletal disorders.

  • 6. Soares, Joaquim JF
    et al.
    Sundin, Örjan
    Mid Sweden University, Faculty of Human Sciences, Department of Social Sciences.
    Jablonska, Beata
    Psychosocial experiences of foreign and native patients with/without pain2004In: Scandinavian Journal of Occupational Therapy, ISSN 1103-8128, E-ISSN 1651-2014, Vol. 11, no 1, p. 36-48Article in journal (Refereed)
    Abstract [en]

    The psychosocial experiences of foreign/native primary care patients with/without pain were examined. The study comprised 328 foreign patients and 794 native patients who completed various scales (e.g. burnout). The design was cross-sectional and data were collected over 15 consecutive days at 20 randomly selected primary care centres. Pain patients were faring worse than pain-free patients concerning demographics/finances, depression, burnout and job demands/control/strain. Foreign pain patients had the worst situation of all patients. Foreign background was a risk factor for depression and burnout. Foreign pain patients also had a more severe clinical situation (e.g. disability) than native pain patients and being a foreign pain patient was associated with a higher risk of disability/the diagnosis of multiple pain. However, foreign background was not a pain risk factor. Female gender was a risk factor for pain and for complex/constant pain/disability. Variables such as sick leave were also important. The authors confirmed previous research and may have provided new insights into the experiences of foreign/native primary care patients with/without pain. However, further research appears necessary, not the least concerning the role of burnout as an antecedent to pain and the role of ethnicity.

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