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Identifying gaps in knowledge: A map of the qualitative literature concerning life with a neurological condition
Mid Sweden University, Faculty of Human Sciences, Department of Health Sciences. Mid Sweden University, Faculty of Human Sciences, Department of Nursing Sciences. School of Occupational Therapy, Dalhousie University, Halifax, Canada.
School of Occupational Therapy, Dalhousie University, Halifax, Canada.
School of Occupational Therapy, Dalhousie University, Halifax, Canada.
2014 (English)In: Chronic Illness, ISSN 1742-3953, E-ISSN 1745-9206, Vol. 10, no 3, 192-243 p.Article, review/survey (Refereed) Published
Abstract [en]

Objectives: To describe patterns in the qualitative literature regarding the everyday experience of living with a neurological condition; to identify areas of depth as well as gaps in the existing knowledge base.

Methods: An extensive search of the literature yielded 474 articles meeting the inclusion criteria. Data extraction, based on scrutiny of both abstract and full text article included country of origin, diagnosis, stated aim, methodological framework/design, participants, and data collection method(s). Studies were categorized into 27 topics within four broad foci.

Results: Four broad foci describe the field: impact and management, daily activities and occupations, impact on family, and the healthcare experience. Overall the research is unevenly distributed by diagnosis; some are well represented while others are the subject of little research. Even diagnoses well represented in quantity can be limited in breadth.

Discussion:Possible explanations for the patterns of emphasis include: a focus on issues and problems, highlighted points of contact between patients and healthcare providers, and ability of participants to voice their views. The literature is also characterized by limited across diagnoses research or that comparing the experience of people with different diagnoses. There is a need for more research in particular diagnoses; more varied data collection methods and acknowledgement of ethnicity, gender, discrimination, and social inequalities.

Place, publisher, year, edition, pages
Sage Publications, 2014. Vol. 10, no 3, 192-243 p.
Keyword [en]
Neurological condition, literature review, everyday life, qualitative, research evaluation
Keyword [sv]
Neurologiska tillstånd, litteraturstudie, kvalitativ forskning, forsknings utvärdering
National Category
Medical and Health Sciences
Identifiers
URN: urn:nbn:se:miun:diva-22810DOI: 10.1177/1742395313516133Scopus ID: 2-s2.0-84907220360OAI: oai:DiVA.org:miun-22810DiVA: diva2:744424
Projects
Living with a Neurological Condition in Canada - LINC
Available from: 2014-09-08 Created: 2014-09-08 Last updated: 2014-10-13Bibliographically approved

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CiteExportLink to record
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Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
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