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Psychosocial morbidity among parents of children with congenital heart disease: A prospective longitudinal study
2006 (English)In: Heart & Lung, ISSN 0147-9563, E-ISSN 1527-3288, Heart & Lung: The Journal of Acute and Critical Care, Vol. 35, no 5, p. 301-314Article in journal (Refereed) Published
Abstract [en]

The study objectives were to assess long-term psychosocial morbidity and its determinants among parents of children with congenital heart disease (PCCHD), and to compare mothers with fathers on psychosocial variables.

Method

The study design was longitudinal. Data comprising PCCHD (n = 632, 58% were women) were collected on two occasions 1 year apart.

Results

Many PCCHD reported psychosocial problems manifested in depression (18%), anxiety (16%-18%), somatization (31%-38%), and hopelessness (16%) during both measurement points. In addition, 7% to 22% reported psychosocial problems persisting over a 1-year period. Consistently over time, mothers reported more severe symptoms of depression, anxiety, somatization, and hopelessness than fathers. Children’s clinical severity did not significantly explain parent’s psychosocial morbidity over time. Instead, parental caregiving burden, dissatisfaction with care, social isolation, and financial instability were associated with an increased risk of long-standing psychosocial morbidity.

Conclusions

An important proportion of PCCHD are at risk of long-standing psychosocial morbidity, suggesting that psychosocial intervention may be beneficial. Feasible interventions are discussed.

Place, publisher, year, edition, pages
2006. Vol. 35, no 5, p. 301-314
National Category
Medical and Health Sciences
Identifiers
URN: urn:nbn:se:miun:diva-16992OAI: oai:DiVA.org:miun-16992DiVA, id: diva2:550976
Available from: 2012-09-09 Created: 2012-09-09 Last updated: 2017-12-07Bibliographically approved

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Soares, Joaquim JF

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