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The integration of chronic illness self-management
Mid Sweden University, Faculty of Human Sciences, Department of Health Sciences.
Mid Sweden University, Faculty of Human Sciences, Department of Health Sciences.
Mid Sweden University, Faculty of Human Sciences, Department of Health Sciences.
2012 (English)In: Qualitative Health Research, ISSN 1049-7323, E-ISSN 1552-7557, Vol. 22, no 3, p. 332-345Article in journal (Refereed) Published
Abstract [en]

Self-management is crucial for people living with chronic diseases, but the actual process of integrating self-management has not been explored in depth. In this article, we investigate the integration of self-management into the lives of people with chronic illness. In this longitudinal study, we used an interpretive description approach. Twenty-one individuals were interviewed regularly during the first 3 years after they were diagnosed with a chronic condition. We found self-management integration to be an ongoing process that included four phases: seeking effective self-management strategies, considering costs and benefits, creating routines and plans of action, and negotiating self-management that fits one's life. The participants managed the phases according to their context, e.g., illness experience, life situation, personal beliefs, and social support. Health care providers should therefore facilitate self-management integration by providing support that is adjusted to the person's phase of self-management integration and life context.

Place, publisher, year, edition, pages
2012. Vol. 22, no 3, p. 332-345
Keywords [en]
comparative analysis; coping and adaptation; health behavior; illness and disease, chronic; interpretive methods; interviews; longitudinal studies; research, qualitative; self-care
National Category
Health Sciences
Identifiers
URN: urn:nbn:se:miun:diva-12396DOI: 10.1177/1049732311430497ISI: 000299894300004Scopus ID: 2-s2.0-84856754262OAI: oai:DiVA.org:miun-12396DiVA, id: diva2:374196
Available from: 2010-12-03 Created: 2010-12-03 Last updated: 2017-12-12Bibliographically approved
In thesis
1. Being creative and resourceful: Individuals’ abilities and possibilities for self-management of chronic illness
Open this publication in new window or tab >>Being creative and resourceful: Individuals’ abilities and possibilities for self-management of chronic illness
2011 (English)Doctoral thesis, comprehensive summary (Other academic)
Alternative title[sv]
Att vara kreativ och resursstark : Individers förmåga och möjlighet till egenvård av kronisk sjukdom
Abstract [en]

Individuals’ self-management styles are crucial for how they manage to live with illness. Commonly investigated factors include social support, self-efficacy, health beliefs, and demographics. There is a gap in the literature with regard to in-depth studies of how those factors actually influence an individual’s self-management.

 

The aim of this thesis was to investigate the underlying mechanisms of self-management from the perspective of individuals living with chronic illness.

 

Interviews were conducted with 47 individuals with various chronic illnesses, some of them repeatedly over two and a half years (a total of 107 interviews). The material was analysed with; constructive grounded theory, content analysis, phenomenography, and interpretive description.

 

The Self-management Support Model identified aspects that influenced participants’ self-management: economic and social situation, social support, views and perspectives on illness, attribution of responsibility, and ability to integrate self-management into an overall life situation. For example, individuals with a life-oriented or disease-oriented perspective on illness prioritized different aspects of self-management. People who attributed internal responsibility performed a more complex self-management regimen than individuals who attributed external responsibility. In conclusion, individuals who were creative and resourceful had a better chance of tailoring a self-management regimen that suited them well. People in more disadvantaged positions (e.g., financial strain, limited support, or severe intrusive illness) experienced difficulty in finding a method of self-management that fit their life situation.

 

These findings can inspire healthcare providers to initiate a reflective dialogue about self-management with their patients.

Place, publisher, year, edition, pages
Sundsvall: Mittuniversitetet, 2011. p. 82
Series
Mid Sweden University doctoral thesis, ISSN 1652-893X ; 109
Keywords
Self-management, self-care, chronic illness, chronic disease, qualitative research, life conditions, beliefs and values, self-management integration, longitudinal, Egenvård, sjukdomshantering, kronisk sjukdom, kvalitativ forskning, livsvillkor, värderingar, egenvårds integrering, hantering, anpassning
National Category
Nursing
Identifiers
urn:nbn:se:miun:diva-13512 (URN)978-91-86694-39-5 (ISBN)
Public defence
2011-05-13, Lubbesalen, M108, Mittuniversitetet, Sundsvall, 10:15 (Swedish)
Opponent
Supervisors
Projects
Exploring individuals’ conceptions as a way to understand self-management among people living with long term medical conditions
Available from: 2011-04-13 Created: 2011-04-12 Last updated: 2012-07-30Bibliographically approved

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Audulv, ÅsaAsplund, KennethNorbergh, Karl-Gustaf

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