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Caregivers' perceptions about terminally ill family members' quality of life
Mid Sweden University, Faculty of Human Sciences, Department of Health Sciences.ORCID iD: 0000-0001-9623-5813
Mid Sweden University, Faculty of Human Sciences, Department of Health Sciences.
Responsible organisation
2007 (English)In: European Journal of Cancer Care, ISSN 0961-5423, E-ISSN 1365-2354, Vol. 16, no 4, 338-345 p.Article in journal (Refereed) Published
Abstract [en]

Caregivers' perceptions on terminally ill family members' quality of life is rarely described. The aim of this study was to describe caregivers' perceptions about terminally ill family members' quality of life when suffering from cancer. Four caregivers participated in repeated focus group, and the data were analysed using qualitative content analysis. The findings were presented through five themes: 'living a normal life', 'being relieved from burdens', 'having a sense of belonging', 'being a symbol of incurable illness' and 'having a sense of dignity'. We found that to manage daily life it was significant to keep up a normal life and participate in social life. One new insight in this study was that caregivers contributed to an extending understanding to the term meaning in which the sense of belonging was fundamental. An obstacle for the sense of belonging was illuminated as the visible signs of incurable illness that stigmatized the ill person, and influenced the dignity. This study highlights the importance of supportive actions from significant others and healthcare professionals for terminally ill family members' quality of life.

Place, publisher, year, edition, pages
2007. Vol. 16, no 4, 338-345 p.
Keyword [en]
Cancer patients, family nursing, palliative home care, qualitative research, semi-structured interviews
Keyword [sv]
Omvårdnad
National Category
Nursing
Identifiers
URN: urn:nbn:se:miun:diva-4691DOI: 10.1111/j.1365-2354.2006.00754.xISI: 000247476200005PubMedID: 17587358Scopus ID: 2-s2.0-34250865188Local ID: 5922OAI: oai:DiVA.org:miun-4691DiVA: diva2:29723
Note

VR-Health

Available from: 2008-09-30 Created: 2009-06-07 Last updated: 2016-10-05Bibliographically approved

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CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf