miun.sePublications
Change search
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf
Staff's experiences of person-centred care in day care for persons with dementia
Mid Sweden University, Faculty of Human Sciences, Department of Nursing Sciences. Centre for Care Research, Mid-Norway, Steinkjer, Norway.
Centre for Care Research, Mid-Norway, Steinkjer, Norway; University of Gävle.
Mid Sweden University, Faculty of Human Sciences, Department of Nursing Sciences.ORCID iD: 0000-0002-1614-7379
(English)Manuscript (preprint) (Other academic)
National Category
Nursing
Identifiers
URN: urn:nbn:se:miun:diva-33509OAI: oai:DiVA.org:miun-33509DiVA, id: diva2:1199050
Available from: 2018-04-19 Created: 2018-04-19 Last updated: 2018-04-19Bibliographically approved
In thesis
1. Dagaktivitetstilbud for personer med demens som bor hjemme: ”Dagen i dag den kan bli vår beste dag”
Open this publication in new window or tab >>Dagaktivitetstilbud for personer med demens som bor hjemme: ”Dagen i dag den kan bli vår beste dag”
2018 (Norwegian)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

The aim of the thesis was to examine how persons with dementia in who live at home experience day care services and what the services mean to them, their relatives and care staff. For persons with dementia, everyday life often lacks social and sensory stimuli, and research has shown that their relatives experience a burden of care that strains their quality of life. In response, more knowledge is necessary about how municipal services in should be designed to ensure that persons with dementia can stay at home for as long as possible. From 2020, municipalities in Norway, will have a statutory duty to offer day care services to persons with dementia. The thesis is based on four qualitative studies. In study I, fieldwork comprised observations and informal conversations with persons with dementia (participants) who receive care from two day care services and staff. Study II involved semi-structured interviews and study III, narrative interviews with relatives, whereas study IV involved semi-structured interviews with care staff. In study I, results revealed that location and buildings affected the inclusion of participants in activities. Where as homey, familiar environments contributed to greater activity among participants, institutional environments contributed to greater passivity, at least from the perspective of participants and staff. In turn, the meaningfulness of participants’ everyday lives depended on staff adaptiveness in exercising person-centred care. In study II, relatives of persons with dementia reported that the pre- and post-diagnosis periods were challenging for them and that the day care services, especially the daily routines that they established, were thus exceptionally meaningful. The relatives reported not only that could they afford to rest on days when the persons with dementia received day care services but that the participants experienced those days to be meaningful as well. At the same time, they reported struggling with deciding for how long it would be reasonable for the persons with dementia to live at home. In study III, results revealed that living with persons with dementia affected the everyday lives of spouses and cohabitants, who had to assume new roles and adapt to living lives full of commitment, singularity, anxiety and oneliness. Spouses and cohabitants not only sought to optimally manage their domestic arrangements but also conceal from others how they felt or thought about their situations. To those ends, day care services therefore helped them to persevere in caring for and living with their loved ones, as well as afforded them time to pursue their personal interests. Being visited by day care staff prevented them from having to ask for help because staff members were there to offer it instead.…Last, during study IV, staff reported striving to implement person-centred care by ensuring the dignity of participants and their relatives and facilitating meaningful activities according to individual needs. However, staff also reported facing various barriers in realising person-centred care, including staff shortages, different levels of functioning among participants and limitations in the design of spaces and their location. When developing day care services, it is important to consider both the physical design and location of buildings in which care will be offered. Person-centred care can guide the organization of adequate, tailored day care services able to afford persons with dementia meaningful everyday lives.

Place, publisher, year, edition, pages
Sundsvall: Mid Sweden University, 2018. p. 78
Series
Mid Sweden University doctoral thesis, ISSN 1652-893X ; 281
Keywords
dementia, relatives, day care services, person-centred care, meaningful days, Personer med demens, pårørende, dagaktivitetstilbud, personsentrert omsorg, meningsfulle aktiviteter
National Category
Nursing
Identifiers
urn:nbn:se:miun:diva-33510 (URN)978-91-88527-53-0 (ISBN)
Public defence
2018-05-04, Nord universitet ved campus Namsos, Norge, Juvika, 10:00 (Norwegian)
Supervisors
Note

Vid tidpunkten för disputationen var följande delarbete opublicerat: delarbete 4 manuskript

At the time of the doctoral defence the following paper was unpublished: paper 4 manuscript

Available from: 2018-04-19 Created: 2018-04-19 Last updated: 2018-04-19Bibliographically approved

Open Access in DiVA

No full text in DiVA

Authority records BETA

Hellzén, Ove

Search in DiVA

By author/editor
Hellzén, Ove
By organisation
Department of Nursing Sciences
Nursing

Search outside of DiVA

GoogleGoogle Scholar

urn-nbn

Altmetric score

urn-nbn
Total: 46 hits
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf