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Bereaved family members' perspectives on suffering among older rural cancer patients in palliative home nursing care: A qualitative study
Nord Universitetet, Norge.
Mid Sweden University, Faculty of Human Sciences, Department of Nursing Sciences.ORCID iD: 0000-0002-1614-7379
Mid Sweden University, Faculty of Human Sciences, Department of Nursing Sciences. Nord Univ, Dept Hlth Sci, Ctr Care Res, Steinkjer, Norway; Högskolan i Gävle.
2017 (English)In: European Journal of Cancer Care, ISSN 0961-5423, E-ISSN 1365-2354, Vol. 26, no 6, article id e12609Article in journal (Refereed) Published
Abstract [en]

Little is known about experiences with receiving home nursing care when old, living in a rural area, and suffering from end-stage cancer. The aim of this study was thus to investigate bereaved family members' perceptions of suffering by their older relatives when receiving palliative home nursing care. Qualitative semi-structured interviews were conducted with 10 family members, in Norway during autumn 2015, and directed content analysis guided by Katie Eriksson's theoretical framework on human suffering was performed upon the data. The two main categories identified reflected expressions of both suffering and well-being. Expressions of suffering were related to illness, to care and to life and supported the theory. Expressions of well-being were related to other people (e.g. familiar people and nurses), to home and to activity. The results indicate a need to review and possibly expand the perspective of what should motivate care. Nursing and palliative care that become purely disease and symptom-focused may end up with giving up and divert the attention to social and cultural factors that may contribute to well-being when cure is not the goal.

Place, publisher, year, edition, pages
2017. Vol. 26, no 6, article id e12609
Keywords [en]
bereaved family members, home nursing care, palliative care, qualitative directed content
National Category
Medical and Health Sciences
Identifiers
URN: urn:nbn:se:miun:diva-29555DOI: 10.1111/ecc.12609ISI: 000414613000027Scopus ID: 2-s2.0-85006049737OAI: oai:DiVA.org:miun-29555DiVA, id: diva2:1056120
Available from: 2016-12-14 Created: 2016-12-14 Last updated: 2018-02-28Bibliographically approved

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Hellzen, OveEnmarker, Ingela

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CiteExportLink to record
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Citation style
  • apa
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