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Bereaved family members' perspectives on suffering among older rural cancer patients in palliative home nursing care: A qualitative study
Nord Universitetet, Norge.
Mid Sweden University, Faculty of Human Sciences, Department of Nursing Sciences.ORCID iD: 0000-0002-1614-7379
Mid Sweden University, Faculty of Human Sciences, Department of Nursing Sciences. Högskolan i Gävle.
2016 (English)In: European Journal of Cancer Care, ISSN 0961-5423, E-ISSN 1365-2354Article in journal (Refereed) Epub ahead of print
Abstract [en]

Little is known about experiences with receiving home nursing care when old, living in

a rural area, and suffering from end-stage

cancer. The aim of this study was thus to

investigate bereaved family members’ perceptions of suffering by their older relatives

when receiving palliative home nursing care. Qualitative semi-structured

interviews

were conducted with 10 family members, in Norway during autumn 2015, and directed

content analysis guided by Katie Eriksson’s theoretical framework on human

suffering was performed upon the data. The two main categories identified reflected

expressions of both suffering and well-being.

Expressions of suffering were related to

illness, to care and to life and supported the theory. Expressions of well-being

were

related to other people (e.g. familiar people and nurses), to home and to activity. The

results indicate a need to review and possibly expand the perspective of what should

motivate care. Nursing and palliative care that become purely disease and symptom-focused

may end up with giving up and divert the attention to social and cultural factors

that may contribute to well-being

when cure is not the goal.

Place, publisher, year, edition, pages
2016.
Keyword [en]
bereaved family members, home nursing care, palliative care, qualitative directed content
National Category
Medical and Health Sciences
Identifiers
URN: urn:nbn:se:miun:diva-29555DOI: 10.1111/ecc.12609OAI: oai:DiVA.org:miun-29555DiVA: diva2:1056120
Note

Publicerad online 17 november 2016

Available from: 2016-12-14 Created: 2016-12-14 Last updated: 2016-12-14Bibliographically approved

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Hellzen, OveEnmarker, Ingela
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CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf