Mid Sweden University

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Being met as a person and not as a diagnosis: meanings of healthcare encounters for women with chronic obstructive pulmonary disease grade III or IV
Mid Sweden University, Faculty of Human Sciences, Department of Health Sciences (HOV).
Mid Sweden University, Faculty of Human Sciences, Department of Health Sciences (HOV).
Mid Sweden University, Faculty of Human Sciences, Department of Health Sciences (HOV).ORCID iD: 0000-0001-8669-416x
2024 (English)In: Health Care for Women International, ISSN 0739-9332, E-ISSN 1096-4665, p. 1-13Article in journal (Refereed) Epub ahead of print
Abstract [en]

Our study seeks to elucidate meanings of healthcare encounters for women with chronic obstructive pulmonary disease stage III or IV. We conducted 12 narrative interviews which were analyzed using phenomenological hermeneutic interpretation. Our analysis revealed one theme; being met as a person and not as a diagnosis with three subthemes: getting sufficient time and feeling involved in care; fulfillment of personal needs; and experiencing disrespect and injustice. We found that meanings of healthcare encounters center on the expectation of being seen as a person. Feeling disrespected and injust leaves women unsupported and could pose serious health risks.

Place, publisher, year, edition, pages
Routledge, 2024. p. 1-13
National Category
Nursing
Identifiers
URN: urn:nbn:se:miun:diva-49912DOI: 10.1080/07399332.2024.2310068ISI: 001159715000001Scopus ID: 2-s2.0-85184909282OAI: oai:DiVA.org:miun-49912DiVA, id: diva2:1814120
Available from: 2024-02-12 Created: 2023-11-23 Last updated: 2024-02-23Bibliographically approved
In thesis
1. Women’s experiences of living with chronic obstructive pulmonary disease stage III or IV and the experiences of their close relatives
Open this publication in new window or tab >>Women’s experiences of living with chronic obstructive pulmonary disease stage III or IV and the experiences of their close relatives
2023 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

This doctoral thesis is in nursing and the overall aim was to explore, describe, and generate knowledge about women’s experiences of living with chronic obstructive pulmonary disease (COPD) stages III or IV, and about the experiences of their close relatives. Living with a serious long-term illness such as COPD profoundly affects a person’s everyday life and thereby their health and well-being. Data have been collected through qualitative individual interviews (I, IV) and narrative interviews (II, III). The interviews have been analyzed via qualitative content analysis (I, IV) and phenomenological hermeneutical interpretation (II, III). The findings show that women with COPD stage III or IV and their close relatives experienced both suffering and moments of health during their everyday lives (I–IV), despite the unpredictability of their severe illness and their ever-present breathlessness (I). Women were the experts of their own illness, managing their everyday lives to enable moments of feeling well (II). In addition, being seen as diagnosis rather than as a person made the women feel ignored by healthcare personnel which influenced their health and well-being in negative way (III). Close relatives experienced difficulties in fully understanding the women’s struggle of living with COPD. In efforts to comprehend their ill health and stress, they must contend with a lack of tailored information and uncertainty while providing practical and emotional support (IV). The findings in this doctoral thesis show that women with COPD stages III or IV were living with an unpredictable ever-present breathlessness that causes suffering in their everyday lives. Despite this woman experienced moments of feeling well. Meanings of healthcare encounters for women with COPD stage III or IV showed that women wished to be seen as a person and not as a diagnosis. Feeling disrespected and unjust leaves women unsupported and could mean serious health risks. Close relatives asked for tailormade information and knowledge to further understand women’s ill health.

Place, publisher, year, edition, pages
Sundsvall: Mid Sweden University, 2023. p. 103
Series
Mid Sweden University doctoral thesis, ISSN 1652-893X ; 394
Keywords
chronic obstructive pulmonary disease, confirmation, everyday life, experiences, healthcare encounters, health, interviews, lived experience, phenomenological hermeneutics, qualitative content analysis, well-being, women
National Category
Nursing
Identifiers
urn:nbn:se:miun:diva-49909 (URN)978-91-89786-26-4 (ISBN)
Public defence
2023-12-13, E409, Holmgatan 10, Sundsvall, 10:00 (Swedish)
Opponent
Supervisors
Note

Vid tidpunkten för disputationen var följande delarbeten opublicerade: delarbete 3 inskickat.

At the time of the doctoral defence the following papers were unpublished: paper 3 submitted.

Available from: 2023-11-23 Created: 2023-11-23 Last updated: 2023-11-23Bibliographically approved

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Ekdahl, AnnSöderberg, SivRising Holmström, Malin

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1011121314151613 of 20
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