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Caregivers' perceptions about terminally ill family members' quality of life
Mittuniversitetet, Fakulteten för humanvetenskap, Institutionen för hälsovetenskap.ORCID-id: 0000-0001-9623-5813
Mittuniversitetet, Fakulteten för humanvetenskap, Institutionen för hälsovetenskap.
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2007 (Engelska)Ingår i: European Journal of Cancer Care, ISSN 0961-5423, E-ISSN 1365-2354, Vol. 16, nr 4, s. 338-345Artikel i tidskrift (Refereegranskat) Published
Abstract [en]

Caregivers' perceptions on terminally ill family members' quality of life is rarely described. The aim of this study was to describe caregivers' perceptions about terminally ill family members' quality of life when suffering from cancer. Four caregivers participated in repeated focus group, and the data were analysed using qualitative content analysis. The findings were presented through five themes: 'living a normal life', 'being relieved from burdens', 'having a sense of belonging', 'being a symbol of incurable illness' and 'having a sense of dignity'. We found that to manage daily life it was significant to keep up a normal life and participate in social life. One new insight in this study was that caregivers contributed to an extending understanding to the term meaning in which the sense of belonging was fundamental. An obstacle for the sense of belonging was illuminated as the visible signs of incurable illness that stigmatized the ill person, and influenced the dignity. This study highlights the importance of supportive actions from significant others and healthcare professionals for terminally ill family members' quality of life.

Ort, förlag, år, upplaga, sidor
2007. Vol. 16, nr 4, s. 338-345
Nyckelord [en]
Cancer patients, family nursing, palliative home care, qualitative research, semi-structured interviews
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URN: urn:nbn:se:miun:diva-4691DOI: 10.1111/j.1365-2354.2006.00754.xISI: 000247476200005PubMedID: 17587358Scopus ID: 2-s2.0-34250865188Lokalt ID: 5922OAI: oai:DiVA.org:miun-4691DiVA, id: diva2:29723
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Tillgänglig från: 2008-09-30 Skapad: 2009-06-07 Senast uppdaterad: 2017-12-12Bibliografiskt granskad

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Melin Johansson, TittiDanielson, Ella

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